A global resource for people affected directly or indirectly by encephalitis, an inflammation of the brain.

Our vision is a world aware of encephalitis, its consequences and the support available.
Our mission is to increase global awareness of encephalitis, saving lives and building better futures

The International Autoimmune Encephalitis Society (IAES) is a global nonprofit organization dedicated to supporting patients and families affected by autoimmune encephalitis. Founded in 2016 and run by volunteer patients and caregivers, IAES provides education, advocacy, and support from diagnosis through recovery, while raising awareness across medical communities worldwide.

Created in May 2022, the ENMDAR association is a french organization specialized in anti-NMDAr encephalitis. It aims to inform and raise awareness among the general public, professionals, and public authorities, to support families affected by anti-NMDAr encephalitis, and to collect donations to advance research.

The Autoimmune Encephalitis Alliance was started by families and patients affected by autoimmune encephalitis. Founded in 2012 the AE Alliance is a non-profit organization based in Durham North Carolina