Are you looking for some help or informations?
It's normal to feel lost when faced with autoimmune encephalitis. Patient associations play a vital role in informing, supporting, and assisting patients and their families. Below you will find trusted associations informations as well as → Patient Resources from them , depending on your needs and situation.
Encephalitis International
♦ Provide help in english and french
♦ Provide stories from people with similar experience
♦ Organize event to inform about the encephalitis effect
♦ Organize online support group
♦ Give practical advice
enmdar - Encephalite anti NMDAr
♦ Specifics of the anti-NMDAR program
♦ French organization
♦ Supporting affected families
♦ Fundraising to advance research
♦ Supporting patients and their families through discussion groups
IAES: International Autoimmune Encephalitis Society
♦ Dedicated exclusively to the needs of patients and families
♦ Created cards deck as a rehabilitation tool and educational aid
♦ Raise awareness
♦ Patient resource Guide to manage AE
